Pediatric End of Life Care Conference Based on the Pediatric End of Life Nursing Education Consortium Curriculum

J6982

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This conference is provided for physicians, nurses, social workers and health care professionals working with pediatric patients with life-threatening medical conditions and their families. Pediatric End of Life Nursing Education Consortium (ELNEC) is a national initiative to improve end-of-life care (EOL). The ELNEC core curriculum has been developed to provide EOL education to health care providers, which translates into excellent care for pediatric patients and their families.

Upon completion of this program, participants should be able to:

• Describe the philosophy and principles of hospice and palliative care with a nursing model of care.
• Identify the need for interdisciplinary team collaboration within a palliative care model.
• Describe the role of the nurse in providing quality palliative care for children and families.
• Recognize changes in society, health care economics and service delivery that necessitate improved professional preparation for palliative care.
• Discuss the unique aspects of suffering for children and families facing a life-threatening illness or event.

Thursday, May 9

• 7 a.m. | Check-In/Continental Breakfast
• 8 a.m. | Welcome and Introductions
• 8:30 a.m. | Module 1 Introduction to Pediatric Palliative Care
  Deana Deeter, CRNP, CHPPN, CPON, PMGT-BC
  This module creates the foundation for the ELNEC-Pediatric Palliative Care (ELNEC-PPC) curriculum. It is an overview of the need to improve care and the role of nurses as members of an interdisciplinary team in providing quality care.

  Objectives

  • 1. Describe the philosophy and principles of hospice and palliative care with a nursing model of care.
  • 2. Identify the need for interdisciplinary team collaboration within a palliative care model.
  • 3. Describe the role of the nurse in providing quality palliative care for children and families.
  • 4. Discuss changes in society, health care economics and service delivery that necessitate improved professional preparation for palliative care.
  • 5. Discuss the unique aspects of suffering for children and families facing a life-threatening illness or event.
• 9:45 a.m. | Module 3 Communication
  Carol May, RN, MSN, MBA, CHPPN
  This module emphasizes the importance of good communication in pediatric palliative care. The complexities of communicating with children and families at this critical time are described, along with suggestions for care.

  Objectives

  • 1. Define the importance of ongoing communication with the interdisciplinary team, patient, and family throughout the end-of-life process.
  • 2. Describe key factors in communicating bad news.
  • 3. Identify characteristics children/families expect of health care professionals in caring for them in this setting.
  • 4. Describe the best settings to communicate bad news.
• 10:45 a.m. | Break
• 11 a.m. | Module 5 Cultural Considerations
  Nicole Hahnlen, RN, CHPPN
  This module reviews dimensions of culture which influence pediatric palliative care. Assessment of culture is emphasized as essential to adequate communication and in providing culturally sensitive care.

  Objectives

  • 1. Identify dimensions of culture and the influence of culture on end-of-life care.
  • 2. Discuss beliefs regarding death and dying held by various cultures.
• Noon | Lunch
• 1 p.m. | Module 4 Ethics
  Katherine Ramey, CRNP
  This module discusses some of the key ethical issues and legal concerns in palliative care for children and provides resources to address these in practice.

  Objectives

  • 1. Define the role of the nurse in supporting ethical practice in end-of-life care.
  • 2. Explain ethical issues and dilemmas that may arise in end-of-life care.
• 2 p.m. | Model 9 Loss, Grief, Bereavement
  Nicole Hahnlen, RN, CHPPN
  This module addresses the challenging aspects of grief, loss, and bereavement of children and families, as well as the loss experiences of health care professionals.

  Objectives

  • 1. Define loss, mourning, grief and bereavement.
  • 2. Provide interventions that may be appropriate to facilitate normal grief.
  • 3. Define personal death awareness and cumulative loss associated with professional caregiving.
• 3:15 p.m. | Break
• 3:30 p.m. | Palliative Care Buzzwords Panel Discussion
  Deana Deeter, CRNP, CHPPN, CPON, PMGT-BC
  Nicole Hahnlen, RN, CHPPN
  Carol May, RN, MSN, MBA, CHPPN
  Katherine Ramey, CRNP
  Palliative care clinicians will discuss buzzwords and phrases that are frequently distressing and emotionally activating for professional caregivers. Panelists will discuss communication skills and strategies for how to respond to these emotionally charged statements.

  Objectives

  • 1. Review the breadth of meaning in emotionally charged caregiver statements.
  • 2. Outline strategies and communication skills to respond to emotionally charged caregiver statements.
• 5 p.m. | Adjournment

Friday, May 10

• 7 a.m. | Check-In/Continental Breakfast
• 8 a.m. | Module 6 Pain Management
  Carol May, RN, MSN, MBA, CHPPN
  This module reviews basic principles of pain assessment and management in infants, children and adolescents with a focus on pain in palliative care.

  Objectives

  • 1. Describe methods of pain control across health care settings.
  • 2. Describe pharmacological and non-pharmacological therapies used to relieve pain.
• 10 a.m. | Break
• 10:15 a.m. | The Words No One Wants To Say: Talking With Kids and Their Caregivers About the Death of a Loved One
  Natalie Chango, MS, CCLS
  Joan McGeary, MS, CCLS

  Objectives

  • 1. Describe the individual differences in developmental stages and their understanding of death.
  • 2. Discuss some of the misconceptions children have about death.
  • 3. Review developmentally appropriate language and strategies to support caregivers in talking to children about the death of a loved one.
• 11:30 a.m. | Module 2 Perinatal and Neonatal
  Katherine Ramey, CRNP
  This module is an overview of the unique aspects of perinatal and neonatal palliative care and offers suggestions for care.

  Objectives

  • 1. Describe the history of perinatal and neonatal hospice and palliative care.
  • 2. Identify standards of professional nursing practice.
  • 3. Identify the types of perinatal loss.
  • 4. Discuss barriers to perinatal palliative care and successful strategies to overcome them.
  • 5. Identify specific clinical interventions that influence support during pregnancy, intrapartum and after the infant’s death.
  • 6. Describe the unique aspects of and interventions for perinatal bereavement.
  • 7. Identify newborns who should receive palliative care.
  • 8. Describe ethical issues in neonatal palliative care and strategies to overcome dilemmas.
  • 9. Identify communication strategies in the Neonatal Intensive Care Unit.
  • 10. Describe the process for withdrawal of mechanical ventilation in the NICU and how to plan for the transition to hospice if the infant does not die.
  • 11. Describe the unique aspects of and interventions for neonatal bereavement.
  • 12. Describe the nurse’s experience in caring for the perinatal and neonatal populations, including the concept of moral distress.
• 12:30 p.m. | Lunch
• 1:30 p.m. | Parent Panel
  Nicole Hahnlen, RN, CHPPN
  The panel will consist of four different families, providing each of them the opportunity to discuss their experiences with pediatric palliative care as it relates to their family circumstances.

  Objectives

  • 1. Describe aspects of grief and loss experienced by the parents who have had children die and nursing interventions that were therapeutic, as well as instances that were not helpful.
  • 2. Identify nursing interventions that families found helpful.
• 3 p.m. | Break
• 3:15 p.m. | Palliative Care Programs
  Deana Deeter, CRNP, CHPPN, CPON, RN-BC
  Carol May, RN, MSN, MBA, CHPPN
  This module focuses on the role of nurses in achieving quality care for children living with life-threatening conditions and their families by reviewing limitations in existing systems and opportunities for change.

  Objectives

  • 1. Describe how primary nursing can improve palliative care across the hospital setting.
  • 2. Recognize opportunities for change within systems and ways to participate in and lead change.
  • 3. Describe how advanced care planning can impact palliative care programs.
  • 4. Describe different models of palliative care in hospital settings.
• 4:15 p.m. | Adjournment

Saturday, May 11

• 7 a.m. | Check-In/Continental Breakfast
• 8 a.m. | Module 7 Symptom Management
  Deana Deeter, CRNP, CHPPN, CPON, RN-BC
  This module builds on Module 6 (Pain Management) by addressing other symptoms common in children with life-threatening illnesses.

  Objectives

  • 1. Identify common symptoms associated with end-of-life processes.
  • 2. Describe interventions that can prevent or diminish symptoms.
• 9:30 a.m. | Module 8 Care at the Time of Death
  Katherine Ramey, CRNP
  This module focuses on care at the actual time of a child’s death, emphasizing the preparation necessary to ensure the best care at this critical event in the trajectory of illness.

  Objectives

  • 1. Describe the multiple roles for nursing in improving quality care at the end of life.
  • 2. Assess physical, psychological, social and spiritual care needs and interventions for an imminently dying patient and their family.
• 10:30 a.m. | Break
• 10:45 a.m. | Self-Care and Resiliency
  Lisa Hahnlen, MS, CYT-200
  Identify the signs, symptoms, and situations that cause moral distress among professional caregivers and explore strategies to care for ourselves and our coworkers, as well as cultivate our resiliency in caring for seriously ill children and their families.

  Objectives

  • 1. Identify the signs/symptoms and situations that cause moral distress among professional caregivers.
  • 2. Explore strategies to care for ourselves and our co-workers, as well as cultivate our resiliency in caring for seriously ill children and their families.
• Noon | Program Summary and Adjournment

Deana Deeter, CRNP, CHPPN, CPON, PMGT-BC
Hummingbird Program Manager
Penn State Health Milton S. Hershey Medical Center
Penn State Health Children’s Hospital

Nicole Hahnlen, RN, CHPPN
Nurse Coordinator
Hummingbird Program
Penn State Health Milton S. Hershey Medical Center
Penn State Health Children’s Hospital

Faculty

Natalie Chango, MS, CCLS
Senior Child Life Specialist
Penn State Health Milton S. Hershey Medical Center
Penn State Health Children’s Hospital

Joan McGeary, MS, CCLS
Senior Child Life Specialist
Penn State Health Milton S. Hershey Medical Center
Penn State Health Children’s Hospital

Invited Faculty

Lisa Hahnlen, MS, CYT-200
MS, Expressive Art Facilitator

Carol May, RN, MSN, MBA, CHPPN
Manager, Supportive Care Program
Children’s Hospital of Pittsburgh
University of Pittsburgh Medical Center

Katherine Ramey, CRNP
Neonatal Nurse Practitioner
University of Pittsburgh Medical Center

Note: Partial credit will not be awarded. Participants must attend all sessions to receive credit.

AMA

Penn State College of Medicine is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.

Penn State College of Medicine designates this live activity for 16.5 AMA PRA Category 1 Credit(s). Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Social Work

Penn State is an approved provider as defined by Pa. Code Sections 47.36(a) (3), 48.36(a)(3), and 49.36(a)(3). Social workers, marriage and family therapists and professional counselors licensed by the state of Pennsylvania can earn 16.5 clock hours of continuing education for completing this course.

PSNA

This activity has been approved for 16.5 contact hours.
Penn State Health Milton S. Hershey Medical Center is approved as a provider of nursing continuing professional development by Pennsylvania State Nurses Association, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation.

The fee is $300 per person and includes a USB drive of digital instruction materials and all meals outlined in the agenda.

Payment is required at the time of registration. If you have any questions or concerns, please email us at ContinuingEd@pennstatehealth.psu.edu.

Registrations received after Wednesday, May 8, will incur a $25 late fee.

Cancellations received after Thursday, May 2, will be assessed a $25 processing fee per activity for multiple-day activities.

No refunds will be made for cancellations received after Monday, May 6.

Accommodations are the responsibility of the attendee.

A block of rooms is available at

Sheraton Harrisburg Hershey Hotel
4650 Lindle Road
Harrisburg, PA, 17111
717-564-5511

• Last Day to Book: Thursday, April 18
• The hotel’s nightly room rate of $159 is subject to applicable state and local taxes in effect at the time of check-out.
• Book your group rate for PSU College of Medicine Conference May 2024

Join us in Hershey

Hershey is conveniently located in central Pennsylvania, just 90 minutes from Baltimore and Philadelphia, two hours from Washington, D.C., and three hours from New York City.

• Harrisburg-Area Attractions
• Hershey Attractions
• Tanger Outlets in Hershey
• Historic Gettysburg
• Pennsylvania Dutch and Amish Country

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